Get support if your child has a birth defect or disability

If you have a child with a birth defect or disability, we can provide you with information about:

  • the birth defect or disability your child was born with; and
  • how to raise a child with a birth defect or disability.

We can also help you get support to raise your child.

Get support with your child

Talk to your health care provider and ask them to refer you for an appointment with the Congenital Anomalies Support Yukon coordinator.

The coordinator is a Canadian Certified Genetic Counsellor and can:

  • provide you with information about your child's birth defect;
  • help you understand the medical jargon you hear;
  • help you connect with local resources; and
  • put you in touch with other families with children with the same or a similar birth defect.

Get help during pregnancies

The Congenital Anomalies Support Yukon coordinator can:

  • support you if you're pregnant with a child with a birth defect;
  • give you information about risks for future pregnancies; and
  • discuss your options when it comes to future pregnancies.

Collecting information about birth defects

We collect information about the number and types of birth defects in Yukon children.

We do this to:

  • identify trends early on;
  • help improve maternal and child health programs; and
  • support healthy pregnancies.

How will you protect my privacy?

The Chief Medical Officer of Health collects information about birth defects under the Public Health and Safety Act.

The information we collect is confidential and protected under Yukon's Health Information Privacy and Management Act (HIPMA).

Find out how we protect your health information.

Do other places collect this information?

Yes. Information about birth defects is collected across Canada. The Public Health Agency of Canada has funding for all provinces and territories for them to improve their birth defect information.

About birth defects in Yukon

Every year, approximately 420 babies are born in Yukon. About 3 to 5% of all children are born with a birth defect.

What are birth defects?

  • Birth defects are physical differences in development that someone has before they're born.
  • We also call birth defects congenital anomalies.
  • Sometimes someone can have birth defects for many years before they're noticed. Others are noticeable at birth.
  • Some examples of birth defects are Down syndrome, fetal alcohol spectrum disorder and heart conditions.
  • Birth defects are the most common cause of medical problems in babies born in Canada.
  • Some birth defects have a genetic cause. Others have an environmental cause. However, we do not know the cause of most birth defects.



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