Learn more about dementia

  • About dementia
  • First Link ® Yukon Dementia Helpline
  • Resources for people living with dementia
  • Resources for families and caregivers
  • Resources for health care providers
  • Other documents and resources

  1. About dementia

    Dementia is an umbrella term for a group of conditions affecting one’s ability to function independently due to changes in thinking, personality, or behaviour. Individuals with dementia may experience changes in their memory, language abilities, decision-making, and how they interact with other people. Dementia also has significant impacts on caregivers, families and society.

    Some key facts about dementia:

    • dementia doesn’t just affect older people – young onset dementia can affect those in their 40s or 50s;
    • dementia is more than just memory loss – it affects day-to-day activities, mood and behaviours;
    • dementia is progressive; and
    • dementia has no known cure…yet.

    What is Alzheimer’s disease?

    Alzheimer's is the most common type of dementia. There are many other types of dementia, including:

    • Vascular dementia;
    • Frontotemporal dementia;
    • Lewy body dementia;
    • Creutzfeldt-Jakob disease;
    • Wernicke-Korsakoff syndrome; and
    • Mixed dementia.

    What are some signs?

    Dementia is not a normal part of aging and there are several risk factors. It interferes with daily life and activities and gets worse over time. Some signs of dementia may include:

    • memory loss;
    • changes in mood, behaviour and personality; or
    • difficulties with thinking, problem-solving and language.

    How to reduce your risk for dementia?

    Some dementia risk factors, like age and genetics, can't be changed. Here are some tips to lower your risk:

    • stay physically active;
    • stay socially active;
    • eat healthy;
    • get good quality sleep; and
    • protect your heart.
  2. First Link ® Yukon Dementia Helpline

    The First Link ® Dementia Helpline is for anyone affected by dementia, whether they are living with dementia or are supporting someone living with dementia. 

    This helpline:

    • provides general information about dementia;
    • provides resources available in your community including support groups and upcoming education workshops; and
    • provides information on supports to navigate the dementia journey.

    Yukoners can reach the helpline by calling the toll-free number: 1-888-852-2579, available from Monday to Friday, 10 am to 8 pm. All calls are confidential.

    Learn more about the First Link ® Yukon Dementia Helpline.


  3. Resources for people living with dementia

    Whether you are someone living with dementia or looking for information about the disease, here’s some information to help along the journey.

    While these resources provide important information, it's not a substitute to talking to your health care provider.

    General information

    Defy Dementia Podcast

    A podcast by Baycrest dedicated to helping you reduce your dementia risk hosted by Jay Ingram and Dr. Allison Sekuler.

    Dispelling the myths of dementia

    Information about the misconceptions of dementia.

    Find a audiologists and Speech-Language Pathologists

    Audiologists and Speech-Language Pathologists can assist with diagnosing hearing, communication and swallowing impairments related to dementia.

    Frequently asked questions about dementia

    Common questions and answers about dementia.

    Government of Canada – Dementia Overview

    Information about dementia, including statistics of dementia in Canada and Canada’s dementia strategy. 

    Hearing in older adults

    Explores the impacts, signs and symptoms of communication disorders with a focus on hearing loss and dementia.

    Indigenous views on dementia

    A summary of Indigenous views on dementia developed by Native Women’s Association of Canada.

    Learn more about the other types of dementia

    Information about the different types of dementia including Alzheimer's.

    Learn about the stages of dementia

    An overview on dementia’s stages and end-of-life-care.

    Reducing the risks of dementia

    10 ways to reduce the risk of dementia.

    The Indigenous Cognition & Aging Awareness Research Exchange (I-CAARE) dementia factsheets

    Dementia resources from an indigenous perspective from the Indigenous Cognition and Aging Awareness Research Exchange US|CA.

    Communication strategies

    Communication changes

    Strategies to deal with common communication changes along the dementia journey.

    Conversations about driving

    A guide to help navigate conversations around driving with dementia and maintaining freedom.

    How to talk about the disease with others

    A tool to help guide difficult conversations after being diagnosed.

    Preparing to talk to your doctor

    Information to help prepare to talk to your doctor.   

    Here is a checklist for your next doctor’s visit.


  4. Resources for families and caregivers

    This section includes resources, training, and long-term care planning for those supporting someone living with dementia.

    While these resources provide important information, it's not a substitute to talking to your health care provider.

    Caregiver supports

    Alzheimer’s and Dementia Caregiver Support Group

    Available to caregivers and family members. This group meets virtually, twice a month. For more information and to see if it’s a right fit for you, contact: [email protected].

    Ambiguous Loss and Grief in Dementia

    Tips and suggestions for caregivers to deal with ambiguous grief.

    Caring for Another

    Information and caregiving tips from Family Caregiver Alliance.

    Caregiver Stress Assessment

    A tool to assess your own well-being as a caregiver.

    Caring for Yourself

    Strategies and caregiver supports from Family Caregiver Alliance.

    Support for yourself

    Tips for looking after your own health while caring for someone along the dementia journey.

    General information

    A guide for Yukon Seniors and Elders

    Programs and services guide for seniors from The Yukon Council of Aging.

    Long distance caregiving

    Tips from the Alzheimer Society on caring for someone long distance.

    Tips for families after the diagnosis

    Here are tips and steps to prepare for the future.

    What to expect during the dementia progression

    What to expect in each stage of dementia.

    Dementia and Responsive Behaviours

    An information sheet on things to consider when having conversations about responsive behaviours.

    Training

    iGeriCare

    Free training lessons as you navigate the dementia journey. 

    SPARK: Shine a Light on Dementia Caregiver Training

    Free training that shares information and develops skills to provide quality care for people with dementia. 

    Long-term care planning

    Advanced Care Planning

    Plan for your future health care choices and create an advanced directive in the Yukon.

    Information on long-term care homes in the Yukon

    Learn more about one of four long-term care homes in the Yukon.

    Learn about wills and estates

    Learn more about the process for wills and estates.

    Long-term Care: Preparing for the move

    Steps and tips for moving into a long-term care.

    Long-term Care: Adjusting after the move

    Strategies to help with the difficult adjustment of moving to long-term care.

    Planning for future health care decisions

    Learn more about the steps for planning for future health care decisions.


  5. Resources for health care providers

    A series of dementia tools and resources for health care providers. If you are a health care provider and need access to certain resources, please contact the Behavioural Care Resource Team at [email protected]

    Behavioural assessment and documentation tools

    Antecedent-Behaviour-Consequence (ABC) Charting

    Suggested charting method to track behaviours and document contextual information on the behaviours.

    Behavioural Supports Ontario – Dementia Observation System (BSO-DOS©)

    The BSO-DOS© is an observation tool that provides objective and measurable data about a person living with dementia.

    Cohen-Mansfield Agitation Inventory (CMAI)

    The CMAI is an observation tool used to assess the frequency of manifestations of agitated behaviors in elderly persons. Reference manual for more information.

    Cornell Scale for Depression

    A suggested screening tool for depression in people living with dementia.

    Fronto Behavioural Inventory

    A suggested questionnaire that looks for a change in behaviour and personality. Reference manual for more information.

    Geriatric Depression Scale

    A suggested tool to screen for depression in elderly persons.

    Hamilton Depression Scale

    A suggested tool designed to rate the severity of depression in patients.

    Kingston Standardized Behavioural Assessment – Community Form

    The KSBA provides a broad and realistic behavioural assessment without specially trained personnel. The Community Form can predict when long-term care placement is needed.

    Nurses Global Assessment of Suicide Risk

    A suggested tool for assessing suicide risk.

    Neuropsychiatric Inventory

    A suggested tool for a comprehensive assessment of psychopathology in patients with dementia. Also included in this resource is the background of the tool.

    Pain Assessment in Advance Dementia (PAINAD)

    The PAINAD assess pain in patients who are cognitively impaired, non-communicative, or suffering from dementia and unable to use self report methods to describe pain.

    Cognitive assessment tools

    Canadian Indigenous Cognitive Assessment tool (CICA)

    The Canadian Indigenous Cognitive Assessment (CICA) is a First Nations community-informed dementia case finding tool. It is a suggested tool to determine cognitive impairment.

    Mini-Mental State Examination (MMSE-2 ® ™)

    The MMSE-2 is a brief, quantitative measure of cognitive status in adults. It can be used to screen for cognitive impairment or to estimate the severity of cognitive impairment at a given point in time.

    Montreal Cognitive Assessment (MoCA test)

    A cognitive screening test that assesses different cognitive domains, attention and concentration, conceptual thinking and memory.

    Dementia approaches and best practices

    Appropriate Use of Antipsychotic (AUA)

    A toolkit that provides guidance regarding the assessment and management of responsive behaviours associated with cognitive impairment and appropriate use of medications in older adults.

    Behaviour and Psychological Symptoms of Dementia Algorithm (BPSD)

    This tool assesses non-cognitive symptoms of perception, thought content, mood or behaviour that frequently occurs in patients with dementia.

    Dementia information for first responders 

    Information for first responders on how to recognize, communicate with and respond to someone with dementia. Here are a 10 quick tips for communicating when talking to a person with dementia. 

    PIECES ™ of my relationship

    A tool to support conversations with those living with dementia. It takes a grounding approach to the person and their unique lived experience as central to their care from the beginning.

    PIECES ™ 3 question template

    A suggested tool for an evidence informed approach to collaborative assessment and shared care focusing on the person-centred approach.

    General information

    Ambiguous Loss and Grief in Dementia

    Tips and suggestions for health care providers on ambiguous grief.

    Palliative care tools

    Advance Care Planning in Canada: Resource Guide for Home and Community Care

    A map of available resources to engage home and community care providers in 3 target behaviours for successful Advance Care Planning.

    Training and education resources

    Dementia Foundations

    A free training program to enhance baseline knowledge of frontline staff in caring for people with dementia.

    DementiAbility

    A training certificate for health care providers and caregivers on dementia.

    Gentle Persuasive Approach (GPA)

    GPA Basics is a dementia care education curriculum based on a person-centred care approach. It is designed for interdisciplinary point of care staff across healthcare sectors.

    Geriatric Certificate Program

    The Geriatric Certificate Program consists of educational programming that is aimed at improving quality of care for our aging population, thereby enhancing the quality of life for Canada's older adults.

    Northern Health geriatrics recordings

    Free recorded sessions on geriatrics from Northern Health’s annual Northern Doctors Day conference.

    PIECES Canada

    A learning resource for health care providers supporting Seniors and Elders living with dementia.

    Project ECHO (Extension of Community Health Outcomes)

    Project ECHO is offered through Baycrest and helps link primary care providers to an interprofessional team of geriatric specialists through weekly videoconferencing sessions.

    U-First

    Training program for non-registered (non-regulated) health care providers to develop a common knowledge base, language, values and approach to caring for people with Alzheimer’s disease and cognitive impairment.


  6. Other documents and resources

    Other information and resources for those living with dementia, caregivers, family members and healthcare provides.

    While these resources provide important information, it's not a substitute to talking to your health care provider.

    Brain health

    An evidence-based guide to maintaining a health mind

    A wellness guide by Cogniciti that covers tips and information on brain health with a focus on memory and dementia.

    Brain-healthy tips to reduce your risk of dementia

    Evidence-based tips and strategies to help you lead a healthy, balanced lifestyle that reduces your risk of dementia.

    BrainXChange

    A series of resources for brain related topics. This includes topics like driving with dementia, types of dementia or brain injury and how it related to dementia.

    Canuckle or Canoku

    Two popular brain games with a Canadian twist.

    Luci – For a healthy brain

    A free program to help provide lifestyle habits that support physical and cognitive health.

    Take a brain assessment

    A free online brain assessment tool. While this tool takes a clinical approach, it is not a substitute to talking to your health care provider.

    Government of Yukon documents

    Aging in Place Action Plan

    This action plan provides a path to promote the well-being of Yukon Seniors and Elders.

    Putting People First final report

    The road map to creating a health and social system that serves the needs of Yukoners better. It includes 76 recommendations on health and social services in the territory.

    Yukon Health Status Report 2022

    The Yukon Health Status Report provides an important measure of the health and well-being of Yukoners.

    Other programs and services

    Adult Protection Services

    Adult Protection Services provides help for someone being abused or neglected.

    Canadian Virtual Hospice

    The Canadian Virtual Hospice provides support for advanced illness, palliative care, loss and grief, people living with illness, family members, people working in healthcare, educators and researchers.

    Chronic Conditions Support Program

    The Chronic Conditions Support Program (CCSP) is a patient-centered collaborative care team. It offers programs and services for Yukoners living with chronic health conditions.

    Healthy eating

    Eating healthy can help reduce the risk of dementia. There are registered dietitians available to all Yukoners.

    Home care program

    A home-based program that provides clients with health services in their homes and supports Yukoners to live independently.

    Hospice Yukon

    Hospice Yukon provides programs and services to help you to better understand the journey of living, dying and grieving. 

    Palliative care resource team

    Palliative care is a specialized approach to care for people and families living with a life-limiting illness. They help navigate the health care system and provide education, resources, and support care providers.

    Yukon Council on Aging

    Yukon Council on Aging (YCOA) offers the Seniors’ Information Centre, the Seniors' Home and Yard Maintenance Program and a variety of publications.

    Yukon Housing Corporation

    The Yukon Housing Corporation (YHC) has programs such as social housing, rent subsidy, loans to repair home.

    Yukon Legal Services Society

    The Yukon Legal Service Society provides legal aid, legal resources and publications for low-income clients. They provide accessible, cost effective and professional legal services in criminal, family, child protection, mental health, and poverty law to eligible people throughout the Yukon.

    Other supporting resources and documents

    Alzheimer Society – Dementia information in other languages

    The Alzheimer Society in Canada has a series of resources in different languages.

    Alzheimer Society – National resources library

    The Alzheimer Society in Canada has a broad range of informational documents, videos and links related to dementia. These resources are for people living with dementia, families, caregivers, healthcare providers and more.

    The Many Faces of Dementia in Canada

    A landmark study about dementia. A landmark study about dementia study that seeks to better understand the many faces of dementia so no one is left behind.


Contact 

If you have any questions about these resources, please contact: [email protected] or [email protected]

Last updated: June 13, 2024